Special party for a special girl with genetic disorder

A special girl from Shelbyville, Tennessee, received a special birthday party on Saturday, Oct. 10, the Times-Gazette reports.

Make-A-Wish Middle Tennessee threw Jayda Mathis a Sesame Street-theme party in Murfreesboro to celebrate her 4th birthday, which was on Oct. 5.

Jayda has a rare genetic disorder, said Debbie Brinkley, her custodial grandmother. The condition is so rare, according to Vanderbilt University Medical Center, that fewer than 60 girls worldwide have a non-functional CASK gene. Most of those affected are girls.

Jayda weighs only 21 pounds and is confined to a heavy special-needs stroller as she is too small for a normal wheelchair, Brinkley said. All of that did not stop her from attending her special party.

“She’s a handful but I love her to death,” Brinkley said.

She rode in style the whole time as a limo picked her up and a borrowed special needs wheelchair was decked out as a princess carriage. A balloon man and a magician were among the entertainment Jayda and her guests enjoyed, according to Make-A-Wish. Elmo and Cookie Monster made an appearance.

FOR MORE: Shelbyville Times-Gazette: Local News: Special party for a special girl (10/18/15)


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